Monday, July 23, 2012

Should People with Fibromyalgia Run Around Naked?

Fibromyalgia is synonymous with pain, but clothing does not have to be painful.  I have found that when I’m going through a flare-up, overdid for the day, or just in a higher level of pain, that I have increased sensitivity to touch and clothes that touch my body can hurt horribly.  The biggest offenders of clothing that increase pain for me include bras, jeans-due to the waistband, and socks.  

Some Clothing Pain Offenders
The title of this post “Should People with Fibromyalgia Run Around Naked?” is intended to simply be a slightly humorous way of acknowledging that a lot of clothes actually cause or exacerbate pain for many people with Fibromyalgia.

Throughout the years, I have had to completely change the way I dress to keep from increasing my pain from clothes.  In the past, I tended to dress up more frequently and rarely wore jeans and never wore sweats (not even at the gym).  Now, in order to alleviate the uncomfortable itchiness and shoots of pain as the clothing rubs against my skin, I have learned some things that work for me clothing wise.

For waistbands, I purposely buy jeans and dress pants a size too large and then belt them gently, so I can loosen it up as needed.  If the pain is bad, I wear sweatpants.  I make sure all of my skirts have elastic bands that fit gently on my body.  I also get light flowing dresses that are not fitted, so they don’t rub against my body.

Finding the right clothing for each individual with Fibromyalgia can be a little tricky, as with everything with Fibromyalgia what works for one person may not work for another, so there tends to be a lot of trial and error as you learn what will work for you.  I thought it might be helpful to talk a little bit about the most offensive clothing for me and what I’ve done to compensate for or alleviate clothing pain.


Footwear:
For footwear I tend to wear Airwalk sandals.  They are loose, comfortable, have decent support, but don’t apply pressure around my ankles at all.  At home, I prefer to just go barefoot. I avoid socks during the summer, unless I’m going for a walk somewhere that might have rough grasses or rocks.  


When I wear socks, I prefer them to fit perfectly and have cropped tops.  If it goes up my ankle onto my leg it actually hurts me.  I’ve had some friends recommend diabetic socks because they are designed really well and tend to be very comfortable, plus they're designed to work with diabetic neuropathy, which certainly has some similar symptoms to the nerve issues we face with Fibromyalgia.  Also, if you wear pantyhose you may want to consider trying ankle highs instead of control tops.


Bras and Underwear:
The worst offender for me are bras, especially if there is any wire in them at all or if they don’t fit perfectly.  If my pain is really high, I sometimes choose to simply not wear one if I can stay home, but I am too conservative to not wear one out in public or if anyone might be coming over to the house to visit.


I’ve had friends recommend Ahhh Bras, especially for larger busted people, but I tend to use Playtex Bras with extra comfort and breathing.  No wires of course!  


Underwear just needs to fit comfortably.  I prefer cotton because it’s gentle with smaller waist bands, usually the bikini style.  No dental floss for a back though, that always looked painful for everyone (whether they have Fibro or not)!

Clothes on Racks

Waistbands:
I already mentioned that I tend to buy one size larger than I need for jeans and pants and then belt them loosely, but when the pain is really bad only elastic bands will work.  


Of course, sweatpants are the most common piece of pants clothing with elastic bands, so I wear them a lot around the house or at night.  


There are also some pajama jeans, pants, and shorts that have elastic bands and fit nicely without binding.  I also admit to really liking loose flowing dresses and skirts,because they look lovely and fit comfortably.

General:
Overall, I find that my best bet for eliminating clothing pain is to ensure that I wear soft loose fabrics.  One thing that may seem a little counter intuitive is that if the clothes are way too big and loose, they will actually rub more against my skin and hurt more, so there is a fine line of how loose the clothing needs to be.  


On top of that, having soft fabrics is probably the most important thing to keep in mind.  I like cotton and some blends as long as they are soft.  I love silk, stretchy knits, and some flannels.  My cousin, who has Fibromyalgia, used to remove the necklines from t-shirts and all tags, because the sensation of the clothing rubbing near her neck caused such annoying pain and discomfort.

Why does clothing cause pain?
An Ant-Which I Hate Due to Allodynia
My understanding is that the pain caused from clothing comes from the symptom of Allodynia that many people with Fibromyalgia have.  


According to the free medical dictionary, Allodynia means “Pain that results from a noninjurous stimulus to the skin” or “a condition in which pain arises from a stimulus that would not normally be experienced as painful.”  


This explains the pain caused by clothing rubbing against your skin (mechanical allodynia), a simple touch or hug (touch allodynia), and extreme temperature changes or pain caused from heat or cold packs (temperature allodynia).  Not everyone with Fibromyalgia has this, but some of us do experience excruciating pain from things that should NOT hurt.  For me, I tend to be more sensitive when the pain is already worse for the day.

Another part of Allodynia that I really dislike is that sometimes a gentle moving touch or an ant walking across my arm will actually cause this horrible sensation through my entire body where I feel every movement everywhere. Like my entire body has bugs climbing all over it.  


Of course I’m not really covered with bugs, but the sensation is really gross. Fortunately that isn’t an everyday occurrence, but it does happen sometimes.  It’s kind of funny, the other day I had to come with things I hate and couldn’t really think of anything, but now I can. I really HATE ants!  You know come to think of it I really HATE indifference too.  But that’s a bit off of the subject…

Conclusion:
So should people with Fibromyalgia run around naked?  Honestly, unless you’re at a nudist camp, probably not. I’m fairly certain there are laws against that at least in public places!  But I do recognize that there are times at home, when fewer clothes are better simply to eliminate clothing pain.

Do you have any issues with clothing causing pain? If so, what have you found that works for you?  With all of us being so different and the symptoms for Fibromyalgia presenting in such different ways, I suspect that the clothing options that I’ve found work best for me might not be the best for everyone. 


Does anyone else have any suggestions or helpful hints for dealing with clothing pain?


15 comments:

  1. Yep, clothing is a challenge. Years ago I transitioned to soft clothing, and use the same strategies you mentioned (great listing, btw). At home it's yoga pants and sweatshirts, never socks. I always loathe winter because I need to wear real shoes and socks- so much grief for my poor feet. When I was working it was more of a challenge to find formal work clothes that didn't hurt, but now I'm a lady of leisure it is so easy to dress for my comfort. Great posting!

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  2. I'm glad to hear that the items I put in this post work for other people. I was a little worried about this post in particular, because it is so geared towards what I do and go through. I know other people have the same issues and wanted to share and find out more. You're right busy clothes area lot tougher!

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  3. Anything that ties around my neck is a no.
    Shirts MUST be V or scooped neck, can't stand anything that high up on my chest.
    I have found that microfiber bras and underwear work best .
    I used to always layer, everything I wore would have a cami underneath, took me a very long time to figure out that was actually bothering me !
    So now, less is best ! Thin, silky or soft clothing and no jeans or tennis shoes unless it's a must !

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  4. Whew! I am going to have to repost this EVERYWHERE anyone who knows me will see, especially my man! He gets so frustrated and upset because he wants to pick out clothes for me but doesn't understand why I reject a lot of what he likes ~ because it's usually itchy, scratchy, or has bangles. & dangles on it. He only knows what he likes to LOOK at and doesn't consider what it FEELS like to me.


    We actually get into minor tiffs because I tend to go sleeveless and wear shorts and when we are sitting next to each other, he has a tendency to jiggle his leg and the fabric from his jeans rubbing on my skin will start irritating and rubbing, but if I shift away or put my hand in between, he feels rejected somehow. The same thing when he's trying to be affectionate and rubs my arm or shoulder in a repetitive manner.

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  5. I definitely have experienced the same problems as you describe, and I actually wrote a post on my blog about a website I found that sells soft clothing, I think it's really worth checking out
    http://www.livinglifewithfms.com/2012/05/soft-clothing-for-fibromyalgia.html

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  6. Very nice and informative posts you have here :) Glad to have found this blog :) Hi i'm Abeeha, and I'm kinds new in the blogging world,, so join me and lemme know some good suggestions regarding clothing and blogging :D Thank you so much :)
    http://mycrimsondreams.blogspot.com/

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  7. I liked your post and checked out the clothing store. The clothes are beautiful.

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  8. These are some great ideas. Thanks for sharing. The v or scooped neck t's probably would be fantastic for my cousin especially. I didn't think about layers in particular, but if for some reason I have to layer my clothes it really does hurt!

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  9. I meant business clothes are a lot tougher to find in fabrics that are soft and don't hurt.

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  10. My husband does this thing where he takes his thumb and rotates it gently on my arm in a tiny circle or back and forth. He does it without even thinking about it. It's meant as a sign of affection.

    It is one of the things that he will do while I'm asleep and I will literally wake up and scream or with tears running down my face. Or he'll start doing this same movement as we're sitting close to one another or whatever, it feels just like the ants to me (bugs all over). I of course react by cringing or pulling away almost immediately.


    My husband feels rejected by it too. He knows better and gets why, but I think it is human nature to think the worst when people cringe or pull away from you. He tends to either get upset or go hang out with his buddies for awhile.

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  11. Also, feel free to repost all you'd like Kina. Honestly anything on my blog is fine to repost (unless you're going for a picture that has specific tag on it that it came from somewhere else, then you need to include that with it if you share it). People are really worried about the copyright pictures on blogs right now and rightfully so, but I want to share information and quotes so reposting is wonderful.

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  12. Clothing does hurt. I have found relief in just wearing very soft, delicate materials. I still dress nice, just have to shop for very soft clothing mostly having something other than just cotton in the fabric. Anything with Modal in it feels really good. Shoes are very problematic and thats just about trial and error. I try them all on and I can usually tell immediately if they will work or not.
    Bedsheets have to be made with modal or some form of material that is super soft (they cost more but are a must). Regular cotton or flannel sheets are a definite no for me to slip into.

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  13. Thanks Priscilla! These are some more great suggestions for dealing with Allodynia.

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  14. All the above. I thought I was the only one with cloths issues. I wear boys short underwear, girls, the elastic around the legs and tummy hurt me. I have to cut off the elastic on the waist but they work for me. Danskin shorts is all I wear, comfy, no underwear underneath makes it better. I also cut off the collars on shirts. I can only wear flip flops or my feet will hurt. I just developed or felt the temp. thing. Sun burns like fire and cold chills me. Wow. I have cut all my cloths to fit me one way or another.

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  15. You are definitely not the only one with clothes issues! You have found some great ways of dealing with them too. Thanks!

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