Thursday, July 5, 2012

Top 10 Fibromyalgia Information Websites

This is a list of my top ten favorite websites about Fibromyalgia with great information for people to learn about FIbromyalgia.

1.  Fibro Center (sponsored by Pfizer)
Pfizer is a pharmaceutical company that makes Lyrica (one of the medications commonly prescribed for Fibro).  They created and sponsored this Fibromyalgia website.  Although I don’t love that it was sponsored by a pharmaceutical company, I do think the information and graphics are fantastic and would be really helpful, especially to someone just starting to learn about Fibromyalgia.

2.  National Fibromyalgia Association (NFA)
The NFA has worked since 1997 to provide support for people with fibromyalgia and other chronic pain illnesses. The NFA hosts international conferences, puts on National Fibromyalgia Awareness Week, and publishes Fibromyalgia AWARE magazine.


3.  National Fibromyalgia Research Association (NFRA)
The NFRA is a nonprofit organization that helps fund research and physician education, works to raise public awareness, and lobbies the government to get more funding for research and recognition. This group has also created an exercise video for Fibro patients.


4.  Mayo Clinic Fibromyalgia Portion
The Mayo Clinic is a nonprofit worldwide leader in medical care, research and education for people from all walks of life.


5.  National Fibromyalgia and Chronic Pain Association (NfmCPA)
The NfmCPA is a nonprofit organization that focuses on supporting people with chronic pain illnesses and their families and friends by continuing education, networking with support groups/advocates, and affiliation with professional organizations.

6.  H.O.P.E. Helping Our Pain and Exhaustion, Inc.
H.O.P.E. is a nonprofit organization that works to educate friends and families, the public, the media and the medical community about fibromyalgia and chronic fatigue syndrome.


7.  Fibromyalgia.com
Has a lot of great articles and a community forum.


8.  Pain.com
Although this website isn’t dedicated specifically to Fibromyalgia, it does have a lot of articles about pain management techniques and if you do a search on Fibromyalgia, there are a few articles specifically about Fibro.

9.  American Chronic Pain Association (ACPA): 
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on the site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life. 

10.  Fibromyalgia Network News
Fibromyalgia Network is an organization that attends medical conferences, interviews researchers and doctors, and sifts through the details in the medical journals - so they can deliver up-to-date objective reporting on Fibromyalgia.  It doesn’t have ads, but to be a member it costs $28 a year.

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